Beyond business

Rare Partners represents a new approach aimed at giving a solution to the well-known problem of finding resources for development of drugs with limited economic return on investment (the so-called orphan drugs).

In this respect, we can not speak of a new “business model” (in most cases there is no business), but rather of a new way to approach the problem and a new opportunity of partnership between the non profit world, the scientific community and the pharmaceutical/biotech companies.

There are very few precedents of “non profit pharmaceutical companies”. We took inspiration from the experience of the Institute for One World Health (iOWH, now a drug development program of PATH), which was founded by Victoria Hale in year 2000 and is very active in the field of neglected diseases, strongly supported by Bill & Melinda Gates Foundation. In 2006 iOWH has obtained the marketing approval in India for the use of paromomycin, an off-patent antibiotic agent, in visceral leishmaniasis, a disease that affects each year about 500,000 people and is almost always fatal if left untreated.

We believe that the same successful approach of iOWH can be applied to the rare diseases field. There are already examples of non profit organizations engaged into development of therapies for orphan diseases, the Italian Telethon and the French Genethon being the most successfull cases.